Travails of Mentally Challenged Relatives Coping with Care in Thulamela Municipality

Authors

  • Konanani Constance Matambela Department of Arts and Social Sciences, Faculty of Humanities, Social Sciences and Education, University of Venda, South Africa
  • Rendani Tshifhumulo Department of Arts and Social Sciences, Faculty of Humanities, Social Sciences and Education, University of Venda, South Africa

DOI:

https://doi.org/10.6000/1929-4409.2021.10.196

Keywords:

Challenges, caregivers, health care practitioners, reintegration, care recipient

Abstract

Background: Forensic psychiatric hospital usually deal with the problem of rejection of mentally ill patient by their families. Families report finding the burden of caring for their mentally Ill relatives who are also capable of committing crimes such as rape, murder and arson unbearable. They have to account for their crimes in the communities and often experience stigma. The family feels judged by both the society and health care professionals when they are unable to cope with the caregiving role. A lot of research on mental illness emphasises more on experiences of mental health care users and the caregiver of these mentally ill family members.

Aim: The study seeks to narrate the toils of mentally ill relatives caring for the sick.

Setting: The study was conducted in 2018 with caregivers of mentally ill patients in Thulamela municipality within the Vhembe district in Limpopo province.

Method: The study was qualitative in nature and an explorative and descriptive study design was used. Five families with relatives being rehabilitated at Hayani psychiatric hospital were chosen using convenience sampling. A focus group was used to collect data from the five families. Data was analysed thematically following the six stages of thematic data analysis.

Results: The study found that caregivers experience emotional, physical, financial, and social strains from caring for their mentally ill relative. They attempt to cope by seeking spiritual guidance and family support.

Conclusion: The forensic mental health system should device special programs that focus on coordinating, capacitating health practitioners and monitoring family care givers support services. Future study that focuses on assessing why health care practitioners are not willing to offer support services to our family care givers should be conducted.

References

Akbari, M., Alavi, M., Irajpour, A., & Maghsoudi, J. (2018). Challenges of Family Caregivers of Patients with Mental Disorders in Iran: A Narrative Review. Iranian journal of nursing and midwifery research, 23(5), 329–337. https://doi.org/10.4103/ijnmr.IJNMR_122_17

Al-HadiHasan, A., Callaghan, P., & Lymn, J. S. (2017). Qualitative process evaluation of a psycho-educational intervention targeted at people diagnosed with schizophrenia and their primary caregivers in Jordan. BMC psychiatry, 17(1), 68. https://doi.org/10.1186/s12888-017-1225-2

Ambikile, J. S., & Outwater, A. (2012). Challenges of caring for children with mental disorders: Experiences and views of caregivers attending the outpatient clinic at Muhimbili National Hospital, Dar es Salaam - Tanzania. Child and adolescent psychiatry and mental health, 6(1), 16. https://doi.org/10.1186/1753-2000-6-16

Basheer, S., Anurag, K., Garg, R., Kumar, R., & Vashisht, S. (2015). Quality of life of caregivers of mentally ill patients in a tertiary care hospital. Industrial psychiatry journal, 24(2), 144–149. https://doi.org/10.4103/0972-6748.181721

Bitter, N. A., Roeg, D. P., Van Nieuwenhuizen, C & Van Weeghel, J., 2016. Identifying profiles of service using housing services and exploring of quality of life and care needs. BMC psychiatry, 16(1), p. 419. https://doi.org/10.1186/s12888-016-1122-0

Campbell, M. M., Sibeko, G., Mall, S., Baldinger, A., Nagdee, M., Susser, E., & Stein, D. J. (2017). The content of delusions in a sample of South African Xhosa people with schizophrenia. BMC psychiatry, 17(1), 41. https://doi.org/10.1186/s12888-017-1196-3

Chien, W. T., Bressington, D., & Chan, S. (2018). A Randomized Controlled Trial on Mutual Support Group Intervention for Families of People with Recent-Onset Psychosis: A Four-Year Follow-Up. Frontiers in psychiatry, 9, 710. https://doi.org/10.3389/fpsyt.2018.00710

Gérain, P., & Zech, E. (2018). Does Informal Caregiving Lead to Parental Burnout? Comparing Parents Having (or Not) Children With Mental and Physical Issues. Frontiers in psychology, 9, 884. https://doi.org/10.3389/fpsyg.2018.00884

Goldenberg, H, & Goldenberg, I. (2012). Family therapy: An overview. Cengage learning.

Grover, S., Pradyumna, & Chakrabarti, S. (2015). Coping among the caregivers of patients with schizophrenia. Industrial psychiatry journal, 24(1), 5–11. https://doi.org/10.4103/0972-6748.160907

http://www.Localgovernment.co.za/Locals/View/135/Thulamela-Local-Municipality).Accessed 12 January 2017.

Iseselo, M. K., Kajula, L., & Yahya-Malima, K. I. (2016). The psychosocial problems of families caring for relatives with mental illnesses and their coping strategies: a qualitative urban-based study in Dar es Salaam, Tanzania. BMC psychiatry, 16, 146. https://doi.org/10.1186/s12888-016-0857-y

Jager, J., Putnick, D. L., & Bornstein, M. H. (2017). II. More than just convenient: the scientific merits of homogeneous convenience samples. Monographs of the Society for Research in Child Development, 82(2), 13–30. https://doi.org/10.1111/mono.12296

Kakuma, R., Minas, H., van Ginneken, N., Dal Poz, M.R., Desiraju, K., Morris, J.E., Saxena, S. & Scheffler, R.M. (2011). Human resources for mental health care: current situation and strategies for action. The Lancet, 378(9803), pp.1654-1663. https://doi.org/10.1016/S0140-6736(11)61093-3

Koschorke, M., Padmavati, R., Kumar, S., Cohen, A., Weiss, H. A., Chatterjee, S., Pereira, J., Naik, S., John, S., Dabholkar, H., Balaji, M., Chavan, A., Varghese, M., Thara, R., Patel, V., & Thornicroft, G. (2017). Experiences of stigma and discrimination faced by family caregivers of people with schizophrenia in India. Social science & medicine (1982), 178, 66–77. https://doi.org/10.1016/j.socscimed.2017.01.061

Kristanti, M. S., Engels, Y., Effendy, C., Astuti, Utarini, A., & Vernooij-Dassen, M. (2018). Comparison of the lived experiences of family caregivers of patients with dementia and of patients with cancer in Indonesia. International psychogeriatrics, 30(6), 903–914. https://doi.org/10.1017/S1041610217001508

Leggett, A. N., Kales, H. C., & Gitlin, L. N. (2019). Finding fault: Criticism as a care management strategy and its impact on outcomes for dementia caregivers. International journal of geriatric psychiatry, 34(4), 571–577. https://doi.org/10.1002/gps.5052

Maslach, C., & Leiter, M. P. (2016). Understanding the burnout experience: recent research and its implications for psychiatry. World psychiatry: official journal of the World Psychiatric Association (WPA), 15(2), 103–111. https://doi.org/10.1002/wps.20311

Mojtabai, R., Stuart, E. A., Hwang, I., Eaton, W. W., Sampson, N., & Kessler, R. C. (2017). Long-term effects of mental disorders on marital outcomes in the National Comorbidity Survey ten-year follow-up. Social psychiatry and psychiatric epidemiology, 52(10), 1217–1226. https://doi.org/10.1007/s00127-017-1373-1

Mokgothu, M. C., Du Plessis, E., & Koen, M.P. (2015). The strengths of families in supporting mentally ill family members. Curationis, 38 (1), 1258. https://doi.org/10.4102/curationis.v38i1.1258

Rodríguez-Pérez, M., Abreu-Sánchez, A., Rojas-Ocaña, M. J., & Del-Pino-Casado, R. (2017). Coping strategies and quality of life in caregivers of dependent elderly relatives. Health and quality of life outcomes, 15(1), 71. https://doi.org/10.1186/s12955-017-0634-8

Scheffelaar, A., Bos, N., Hendriks, M., van Dulmen, S., & Luijkx, K. (2018). Determinants of the quality of care relationships in long-term care - a systematic review. BMC health services research, 18(1), 903. https://doi.org/10.1186/s12913-018-3704-7

Shah, A., Wheeler, L., Sessions, K., Kuule, Y., Agaba, E., & Merry, S. P. (2017). Community perceptions of mental illness in rural Uganda: An analysis of existing challenges facing the Bwindi Mental Health Programme. African journal of primary health care & family medicine, 9(1), e1–e9. https://doi.org/10.4102/phcfm.v9i1.1404

Sorsdahl, K., Stein, D.J., Grimsrud, A., Seedat, S., Flisher, A.J., Williams, D.R. & Myer, L. (2009). Traditional healers in the treatment of common mental disorders in South Africa. The Journal of nervous and mental disease, 197(6), p.434. https://doi.org/10.1097/NMD.0b013e3181a61dbc

South African collage of Applied Psychology. (2018). The shocking state of mental health in South Africain 2018.https://www.sacap.edu.za/blog/counselling/mental-health-south-africa/

Walke, S. C., Chandrasekaran, V., & Mayya, S. S. (2018). Caregiver Burden among Caregivers of Mentally Ill Individuals and Their Coping Mechanisms. Journal of neurosciences in rural practice, 9(2), 180–185. https://doi.org/10.4103/jnrp.jnrp_312_17

Walsh, F. (2015). Strengthening family resilience. Guilford publications.

World health organisation. Depression and other common disorders: global health estimate. (2017). World health organisation.

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Published

2021-12-31

How to Cite

Matambela, K. C., & Tshifhumulo, R. (2021). Travails of Mentally Challenged Relatives Coping with Care in Thulamela Municipality. International Journal of Criminology and Sociology, 10, 1732–1745. https://doi.org/10.6000/1929-4409.2021.10.196

Issue

Section

Themed Issue: Criminality and Insecurity: Protecting the African Society through Developmental Initiatives