Intellectual Developmental Disability Bio-Banking: Public Support from the European Union
DOI:
https://doi.org/10.6000/2292-2598.2015.03.02.4Keywords:
Research and innovation, Horizon 2020, Framework Programme, European Commission, brain.Abstract
Supporting health research has been a long-standing commitment for the European Union (EU). Over several Framework Programmes for Research and Innovation, the EU contributed to advancing scientific knowledge on intellectual disability and addressing the unmet needs of affected people, their families and carers. Bio-banking is instrumental to such research. This article presents the various streams through which the EU has helped developments in this area and highlights opportunities for the future.
References
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[25] Council Regulation (EU) No 557/2014 of 6 May 2014 Establishing the Innovative Medicines Initiative 2 Joint Undertaking
[26] Horizon 2020 Excellent Science (http://ec.europa.eu/ programmes/horizon2020/en/h2020-section/excellent-science; accessed on 17 February 2015)
[27] Horizon 2020 Industrial Leadership (http://ec.europa.eu/ programmes/horizon2020/en/h2020-section/industrial-leadership; accessed on 17 February 2015)
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http://dx.doi.org/10.1016/j.ridd.2010.12.018
[3] Wittchen HU, Jacobi F, Rehm J, Gustavsson A, Svensson M, Jönsson B, et al. The size and burden of mental disorders and other disorders of the brain in Europe 2010. Eur Neuropsychopharmacol 2011; 21(9): 655-79.
http://dx.doi.org/10.1016/j.euroneuro.2011.07.018
[4] TACTICS FP7 project, grant agreement number 278948, http://www.tactics-project.eu/ (accessed on 02 February 2015)
[5] Ramsey JM, Guest PC, Broek JA, Glennon JC, Rommelse N, Franke B, et al. Identification of an age-dependent biomarker signature in children and adolescents with autism spectrum disorders. Mol Autism 2013; 4(1): 27.
http://dx.doi.org/10.1186/2040-2392-4-27
[6] DENAMIC FP7 project, grant agreement number 282957, http://www.denamic-project.eu/ (accessed on 02 February 2015)
[7] Llop S, Julvez J, Fernandez-Somoano A, Santa Marina L, Vizcaino E, Iñiguez C, et al. Prenatal and postnatal insecticide use and infant neuropsychological development in a multicenter birth cohort study. Environ Int 2013; 59: 175-82.
[8] Regulation (EU) No 1291/2013 of the European Parliament and of the Council of 11 December 2013 establishing Horizon 2020 - the Framework Programme for Research and Innovation (2014-2020) and repealing Decision No 1982/2006/EC
[9] Personalising Health and Care (H2020-PHC-2014-2015; http://ec.europa.eu/research/participants/portal/desktop/en/opportunities/h2020/master_calls.html#h2020-phc-2014-2015; accessed on 02 February 2015)
[10] EU-AIMS IMI project, grant agreement number 115300, http://www.imi.europa.eu/content/eu-aims and http://www.eu-aims.eu/ (accessed on 02 February 2015)
[11] RD-Connect FP7 project, grant agreement number 305444, http://rd-connect.eu/ (accessed on 02 February 2015)
[12] Eleni Zika, Daniele Paci, Tobias Schulte in den Bäumen, et al. Biobanks in Europe: Prospects for Harmonisation and Networking (EUR 24361 EN - 2010; http://ftp.jrc.es/EURdoc/ JRC57831.pdf; accessed on 02 February 2015)
[13] Proposal for a Regulation of the European Parliament and of the Council on the protection of individuals with regard to the processing of personal data and on the free movement of such data (General Data Protection Regulation) (COM(2012) 11 final)
[14] Communication from the Commission: Europe 2020 A strategy for smart, sustainable and inclusive growth (COM(2010) 2020 final); http://ec.europa.eu/europe2020/ index_en.htm; accessed on 17 February 2015
[15] Justice and Home Affairs Council, meeting 04-05 December 2014 (nr 3354; http://www.consilium.europa.eu/en/meetings/ jha/2014/12/04-05/; accessed on 17 February 2015)
[16] European Parliament legislative resolution of 12 March 2014 on the proposal for a regulation of the European Parliament and of the Council on the protection of individuals with regard to the processing of personal data and on the free movement of such data (General Data Protection Regulation) (P7_TA(2014)0212) (http://www.europarl.europa.eu/sides/ getDoc.do?type=TA&language=EN&reference=P7-TA-2014-0212; accessed on 17 February 2015)
[17] European Strategy Forum on Research Infrastructures http://ec.europa.eu/research/infrastructures/index_en.cfm?pg=esfri (accessed on 17 February 2015)
[18] BBMRI FP7 project, grant agreement number 212111; http://cordis.europa.eu/project/rcn/88365_en.html (accessed on 17 February 2015)
[19] Commission Implementing Decision of 22 November 2013 on setting up the Biobanks and Biomolecular Resources Research Infrastructure Consortium (BBMRI-ERIC) as a European Research Infrastructure Consortium (2013/701/EU)
[20] BBMRI-ERIC http://bbmri-eric.eu/ (accessed on 02 February 2015)
[21] EuroBioBank catalogue (http://www.eurobiobank.org/en/ services/CatalogueHome.html; accessed on 02 February 2015)
[22] EU Marie Sk?odowska-Curie actions - Research Fellowship Programme http://ec.europa.eu/research/mariecurieactions/ (accessed on 02 February 2015)
[23] ASSISTID FP7 project, grant agreement number 608728; http://www.assistid.eu/ (accessed on 02 February 2015)
[24] European Month of the Brain (http://ec.europa.eu/research/ conferences/2013/brain-month/index_en.cfm; http://ec.europa.eu/research/conferences/2013/brain-month/pdf/dublin/dublin_month_brain_conference_report.pdf; accessed on 17 February 2015)
[25] Council Regulation (EU) No 557/2014 of 6 May 2014 Establishing the Innovative Medicines Initiative 2 Joint Undertaking
[26] Horizon 2020 Excellent Science (http://ec.europa.eu/ programmes/horizon2020/en/h2020-section/excellent-science; accessed on 17 February 2015)
[27] Horizon 2020 Industrial Leadership (http://ec.europa.eu/ programmes/horizon2020/en/h2020-section/industrial-leadership; accessed on 17 February 2015)
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Published
2015-08-07
How to Cite
Moedas, C. (2015). Intellectual Developmental Disability Bio-Banking: Public Support from the European Union. Journal of Intellectual Disability - Diagnosis and Treatment, 3(2), 70–75. https://doi.org/10.6000/2292-2598.2015.03.02.4
Issue
Section
Special Issue - Intellectual Developmental Disability Biobanking (IDDB)
